Journal Article 1 Mention
Prevalence and Early Identification of Autism Spectrum Disorder Among Children Aged 4 and 8 Years — Autism and Developmental Disabilities Monitoring Network, 16 Sites, United States, 2022
Kelly Shaw2025
Susan P. WilliamsMary Patrick
Top 1% · 100th Percentile
681 citations · Cognitive Neuroscience
Open Access

TLDR

More children are being identified with autism at younger ages, especially in groups that were previously less likely to be diagnosed. This means more kids may get help earlier, but there are still big differences in how and when children are identified depending on where they live.

Summary

1 Study Aim

The study aims to measure how common autism spectrum disorder (ASD) is among children aged 4 and 8 years in 16 different communities across the United States in 2022. It also seeks to understand how early children are being identified with ASD, and whether there are differences in identification based on sex, race, ethnicity, or neighborhood income. The authors want to provide data that can help communities plan for services and improve early and fair identification of ASD. The study set out to find out how many children have autism and how early they are being diagnosed in different parts of the country.

2 Study Design

Researchers used the Autism and Developmental Disabilities Monitoring (ADDM) Network, which collects information from health and education records in 16 U.S. sites. They looked at children who were 4 or 8 years old in 2022 and lived in the surveillance areas. Children were counted as having ASD if they had a diagnosis, special education eligibility, or a relevant medical code. The study also tracked children suspected of having ASD at age 4. Data included demographic details, cognitive test results, and the types of autism tests used. Statistical methods, including Bayesian modeling, were used to analyze prevalence and trends. The study reviewed health and school records for thousands of 4- and 8-year-olds in 16 U.S. communities to see how many had autism and how early they were identified.

3 Findings

The study reveals that in 2022, about 1 in 31 children aged 8 years were identified with ASD across the 16 sites, with rates ranging widely by location. ASD was 3.4 times more common in boys than girls. Prevalence was higher among Asian or Pacific Islander, Black, Hispanic, American Indian/Alaska Native, and multiracial children than among White children. About 40% of children with ASD also had an intellectual disability, with higher rates in Black and American Indian/Alaska Native children. Children born in 2018 were more likely to be identified with ASD by age 4 than those born in 2014, showing progress in early identification. The COVID-19 pandemic briefly disrupted evaluations, but early identification rebounded. The study recommends improving access to diagnostic and support services, especially in communities with lower identification rates, and learning from successful local practices to ensure all children with ASD get timely help. More children are being diagnosed with autism, especially at younger ages and in groups that were previously less likely to be identified, but there are still big differences depending on where they live.

Abstract

Problem/Condition: Autism spectrum disorder (ASD). Period Covered: 2022. Description of System: The Autism and Developmental Disabilities Monitoring Network is an active surveillance program that estimates prevalence and characteristics of ASD and monitors timing of ASD identification among children aged 4 and 8 years. In 2022, a total of 16 sites (located in Arizona, Arkansas, California, Georgia, Indiana, Maryland, Minnesota, Missouri, New Jersey, Pennsylvania, Puerto Rico, Tennessee, Texas [two sites: Austin and Laredo], Utah, and Wisconsin) conducted surveillance for ASD among children aged 4 and 8 years and suspected ASD among children aged 4 years. Surveillance included children who lived in the surveillance area at any time during 2022. Children were classified as having ASD if they ever received 1) an ASD diagnostic statement in a comprehensive developmental evaluation, 2) autism special education eligibility, or 3) an ASD International Classification of Diseases, Ninth Revision (ICD-9) code in the 299 range or International Classification of Diseases, Tenth Revision (ICD-10) code of F84.0, F84.3, F84.5, F84.8, or F84.9. Children aged 4 years were classified as having suspected ASD if they did not meet the case definition for ASD but had an evaluator's suspicion of ASD documented in a comprehensive developmental evaluation. Results: Among children aged 8 years in 2022, ASD prevalence was 32.2 per 1,000 children (one in 31) across the 16 sites, ranging from 9.7 in Texas (Laredo) to 53.1 in California. The overall observed prevalence estimate was similar to estimates calculated using Bayesian hierarchical and random effects models. ASD was 3.4 times as prevalent among boys (49.2) than girls (14.3). Overall, ASD prevalence was lower among non-Hispanic White (White) children (27.7) than among Asian or Pacific Islander (A/PI) (38.2), American Indian or Alaska Native (AI/AN) (37.5), non-Hispanic Black or African American (Black) (36.6), Hispanic or Latino (Hispanic) (33.0), and multiracial children (31.9). No association was observed between ASD prevalence and neighborhood median household income (MHI) at 11 sites; higher ASD prevalence was associated with lower neighborhood MHI at five sites.Record abstraction was completed for 15 of the 16 sites for 8,613 children aged 8 years who met the ASD case definition. Of these 8,613 children, 68.4% had a documented diagnostic statement of ASD, 67.3% had a documented autism special education eligibility, and 68.9% had a documented ASD ICD-9 or ICD-10 code. All three elements of the ASD case definition were present for 34.6% of children aged 8 years with ASD.Among 5,292 (61.4% of 8,613) children aged 8 years with ASD with information on cognitive ability, 39.6% were classified as having an intellectual disability. Intellectual disability was present among 52.8% of Black, 50.0% of AI/AN, 43.9% of A/PI, 38.8% of Hispanic, 32.7% of White, and 31.2% of multiracial children with ASD. The median age of earliest known ASD diagnosis was 47 months and ranged from 36 months in California to 69.5 months in Texas (Laredo).Cumulative incidence of ASD diagnosis or eligibility by age 48 months was higher among children born in 2018 (aged 4 years in 2022) than children born in 2014 (aged 8 years in 2022) at 13 of the 15 sites that were able to abstract records. Overall cumulative incidence of ASD diagnosis or eligibility by age 48 months was 1.7 times as high among those born in 2018 compared with those born in 2014 and ranged from 1.4 times as high in Arizona and Georgia to 3.1 times as high in Puerto Rico. Among children aged 4 years, for every 10 children meeting the case definition of ASD, one child met the definition of suspected ASD.Children with ASD who were born in 2018 had more evaluations and identification during ages 0-4 years than children with ASD who were born in 2014 during the 0-4 years age window, with an interruption in the pattern in early 2020 coinciding with onset of the COVID-19 pandemic.Overall, 66.5% of children aged 8 years with ASD had a documented autism test. Use of autism tests varied widely across sites: 24.7% (New Jersey) to 93.5% (Puerto Rico) of children aged 8 years with ASD had a documented autism test in their records. The most common tests documented for children aged 8 years were the Autism Diagnostic Observation Schedule, Autism Spectrum Rating Scales, Childhood Autism Rating Scale, Gilliam Autism Rating Scale, and Social Responsiveness Scale. Interpretation: Prevalence of ASD among children aged 8 years was higher in 2022 than previous years. ASD prevalence was higher among A/PI, Black, and Hispanic children aged 8 years than White children aged 8 years, continuing a pattern first observed in 2020. A/PI, Black, and Hispanic children aged 8 years with ASD were also more likely than White or multiracial children with ASD to have a co-occurring intellectual disability. Identification by age 48 months was higher among children born in 2018 compared with children born in 2014, suggesting increased early identification consistent with historical patterns. Public Health Action: Increased identification of autism, particularly among very young children and previously underidentified groups, underscores the increased demand and ongoing need for enhanced planning to provide equitable diagnostic, treatment, and support services for all children with ASD. The substantial variability in ASD identification across sites suggests opportunities to identify and implement successful strategies and practices in communities to ensure all children with ASD reach their potential.

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